Just Talking Podcast

Casual conversations with purpose featuring interesting, inspiring, and innovative people from a variety of backgrounds, experiences, and industrie...
This week I'm joined by Christalle Bodiford for a conversation about living with epilepsy, the challenges of a misdiagnosis, the relief when a proper diagnosis is received, battling stigma, and creating a nonprofit organization in Life Elektrik to promote epilepsy support, education, and advocac...
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Happy New Year! Rebecca Pine joins me this week to talk about her breast cancer diagnosis, weighing the social and personal implications of breast reconstruction surgery, and co-founding The Breast and the Sea, a written and photographic project empowering breast cancer survivors. Keep up with R...
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Lydia Beier joins me for a conversation about living with depression and bipolar disorder, the challenges and opportunities that come with battling mental health stigma, and the value of starting a conversation to make a difference in people's lives. Keep up with Lydia at beinglydia.com and chro...
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Jen Loving joins me for a conversation about raising multiple children with diabetes, navigating a hemophilia diagnosis, exhibiting self care through creative hair styles, and the positive impact you can make on the world by sharing your story. Follow Jen on Twitter at @jloveblueshoe and thelovi...
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This week I'm joined by Peggy Stephens for a conversation about inflammatory breast cancer, the challenge of rapidly understanding urgent treatment options, working with the Inflammatory Breast Cancer Foundation, and creating strong and effective advocacy and awareness campaigns for IBC. Learn m...
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Angela Cohen joins me this week to talk about her life with multiple chronic conditions, finding time for self care, defining a unique voice in patient advocacy, and the importance of empathy and shared experiences. Follow Angela on Twitter @angelee828. Run Time - 41:47 Send your feedback to fee...
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Carin Anderson joins me this week for a conversation about aortic disease, navigating a complicated world of terminology and treatment options and outcomes, growing a small outreach initiative into a widely respected and recognized nonprofit organization, and the complexity of invisible illness ...
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This week I'm joined by Chrisa Hickey for a conversation about childhood mental illness, fighting mental health stigma, navigating the Special Education system, sibling issues, and parental self-care. Trigger Warning: Suicide. Learn more about Chrisa's story and advocacy efforts at themindstorm....
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Becky Brandt joins me this week for a conversation about central pain syndrome, battling stigma, creating an online resource for world in the Central Pain Nerve Center, and carving a unique path in patient advocacy on behalf of people living with central pain syndrome. Learn more about central p...
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This week I'm joined by Michele Hillman for a conversation about her son's multiple misdiagnosis adventures, understanding the impact of strabismus eye surgery for a 22-month old child, gaining an appreciation for how vision impacts development, the value of vision therapy, and channeling a path...
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Kathy Young joins me for a lively discussion about her life with multiple sclerosis, finding her voice in patient advocacy through her blog and podcast, and advocating for patient advocates to get fairly compensated for their time. Learn more about Kathy's advocacy efforts fumsnow.com and Patien...
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This week I'm joined by Kelly Crabb for a conversation about her life with Crohn's Disease, finding her voice as a patient advocate, her stamina as a runner, and her community through the Purple Project. Follow Kelly's advocacy efforts on Twitter @girlsgotguts and Facebook @kellyontherun. Run Ti...
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Patient advocate Joan Mueller joins me this week for a conversation about her life with arthritis, its impact on her work as an Assistant Hospital Director, the challenges that come with physical therapy and relearning motor functions, and how to create more empathy in health care. Run Time - 38...
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This week I'm joined by Kristal Kent for a conversation about fibromyalgia, the widespread pain index, challenges that come with an invisible illness, and the positivity and empathy that an online patient community can generate. Learn more about Kristal's advocacy efforts at @KristalPainChronicl...
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Maria Thomas joins me this week to talk about her life with hyperhidrosis, share her perspective on defining chronic diseases as disabilities, empowerment and validation that is received from peers and providers, and navigating social cues most people take for granted. There's also a lot of my n...
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This week I'm joined by Justin Birckbichler for a conversation about his testicular cancer diagnosis, identifying an opportunity to educate through humor, really clever puns, and creative opportunities for testicular cancer advocacy. Learn more about Justin's advocacy efforts at aballsysenseoftu...
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Erin Smith joins me this week to talk about her life with celiac disease, traveling the world in search of great gluten free food, challenges that arise when your medical necessity becomes a culinary fad, and New York accents. Learn more about Erin's advocacy efforts at glutenfreeglobetrotter.co...
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This week I'm joined by Frank Rivera for a conversation about his sarcoidosis diagnosis, the challenges and opportunities that come with living with a rare disease, living with multiple other chronic illnesses, and how patient advocacy efforts can create lasting relationships. Learn more about F...
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Robert Joyce joins me this week to talk about his life with multiple sclerosis, life in a small Irish town, making the most of the good days, the value in online patient communities, and Robert takes a few minutes to explain the different types of multiple sclerosis. Learn more about Robert's ad...
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This week, I'm joined by Derek Canas for a conversation about having open heart surgery at 3 months old, have five pacemakers installed over his life to date, using positivity and humor through his patient advocacy efforts, the ongoing stigma for people living with AIDS, and the art of a perfect...
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